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Thursday, October 13, 2011

31 for 21: IEP...Done , Em's Heart... Perfect

We had a big day on Tuesday! I went to Em's IEP meeting and Peter took Emmie to the cardiologist. We both had great days.  Her IEP meeting was fabulous. Emmie has such an amazing team waiting for her at school. I feel 100% confident that they will do everything we want for her. Her teacher, Miss Lisa instantly gave me that "feel good feeling". She is pleasant and confident and never flinched when I told her Emmie is a runner and a thrower. They have doorbells on all the doors in the classrooms, lol! That's going to be going off all day:)
As for her services, she qualified for all of them. She will be getting ST, OT and PT. She will be in a divided classroom with four typically developing kids and four with special needs.
Her teacher even got me excited about potty training. Em can wear pull ups to school because... when one pees they all pee. So flipppin cute!! And Emmie does learn by watching. The only small obstacle there is that Emmie is the only Princess in a class of Princes!!! Not sure the  observing and learning method applies here. But hey sitting or standing, as long as she's making the connection and it gets in the bowl I'm good!


On to cardiology. Em did fantastic. She was scheduled for an echocardiogram, which i did not tell Peter about. I figured there was absolutely no way she would be still enough for them to do it. I was expecting them to suggest she be sedated. Something I really didn't want to consider. Emmie  has a good heart, she's never had surgery but she was born with a Right Bundle Branch Blockage Complete. basically a wiring issue. There is no treatment for it and it does not in any way interfere with her everyday life or health. Many people have a BB but most don't even know it. The only odd thing about it is that you usually get a BB because of a trauma that your heart has been through, like a heart attack or surgery. Em's had none of that. Probably just a weird Down syndrome thing. And she was born with a small hole in her heart. Really small.
So anyway, she did it! She stayed perfectly still the whole time. I was amazed . The doctor said the hole has completely closed and as far as the BB there really is not a lot of data on them. Just watch her for any signs that her heart is having problems, like her color and if she gets tired fast all the usual things. Emmie has never shown any signs of having any sort of problems like that so I'm pretty confident as is her cardiologist that this BB will not cause any problems. She doesn't have to go back for a year.

And this would have been my header picture if Blogger would have let me up load it. Another great day apple picking.


7 comments:

  1. Wow, that picture sure would be a great header pic!!

    So glad her visit went well (I'd never heard of a BB before - thanks for the lesson!), and that the IEP meeting went well!! Having a teacher that gives you the warm fuzzies is super-important.

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  2. Yay!! Glad the IEP and the cardio appt went well.

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  3. YAHOO what a fantastic Tuesday you guys had! Can't wait to hear how she soars in preschool! They are going to love her!

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  4. yeah for a great team and double yeah for a great heart! Sweet picture too:)

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  5. so happy her iep meeting went so well and that her heart is GREAT :) yeah!

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  6. IEPs can often be discouraging ro parents so Im really glad to see one where the parents really felt supported by staff! What a great start to the school year.

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