Tuesday, April 28, 2009

True Inspiration!

This last week has been filled with feelings I never thought I would encounter, maybe it's naivety or ignorance, call it what you will, but this past week has opened my eyes, quite widely, to this new world I am in. This world of DS. It is only because Emilia has DS that families with children with cancer or other life threatening conditions have come into my life, through my blog or others that I happen upon. This unpredictable rollercoaster ride. This past week has been filled with news of last and final rounds of chemo, (great) to final chances of life, stressful tests and then the even more stressful, waiting for results. I've been angry this past week, very very angry. I hate cancer and heart conditions and freaky conditions that no one can explain, but can somehow take a child's life. Now, don't get me wrong I haven't been living under a rock all my life, I am obviously well aware that children get cancer and are born sick, and the outcome isn't always great. I guess what I'm saying is that I never had so many beautiful faces to put with such ugly sicknesses. I've never added so many children and families to prayer lists or asked other people to pray for so, so many. Some dear, but crazy friends have commented that for some reason, I am an inspiration. No, please!No, I am not inspiring. I did nothing but give birth to Emilia, who happens to have DS, and I doubted myself the whole time I was pregnant.I started this blog mostly to give hope to anyone who may have just got the news that they are being blessed with a baby who is going to be facing some challenges , and maybe as parents they are not quite sure how that could be a blessing. I just want to give encouragement, proof that it will be all good. I got a lot more than I bargained for, this blog has opened up yet another world to me. Families bonded together, families with faith like I've never seen, going through the same scary nightmares . Comfort being found in a comment or an e-mail from someone on the other side of the country or in another country for that matter. Thousands coming together to pray and give strength to one family fighting the battle of a lifetime. If you want to see inspiration, click on the "my blog list" there you will find inspiration, and they will lead you to a hundred more inspiring families. So to all the families out there, dealing day to day with uncertainties, thank you, for your inspiration and for letting us into your lives. God Bless You, All

6 comments:

scrappy quilter said...

You are an inspiration even if you don't think you are. Has you raise your little one, there will be those who will be inspired by your and by her. As a mom of a son with DS (he is now 19), many have been inspired by him. It's going to be awesome to see what you and her accomplish in the years to come.

Emily said...

Thank you so much for commenting on my blog. We are all on an amazing journey and it is wonderful to be able to share it with other people. I am also told I inspire people... but yet don't quite understand. You just inspired me though! I am excited to follow your blog also!

Missy said...

Well said my friend, well said. You touch way more hearts than you'll ever know....and that IS inspiring. So just accept the fact that well, you Rock Mama, you rock....and there is always proof of that with those five 'little rockers' you and Peter created! Yes, you can tell Peter he too rocks! haha Have a beautiful day bud!

Jeana said...

Thank you for your comments on my blog, I will treasure them. I'm excited to keep up on your blog. Its so comforting knowing that there are some many out there who know what we are going through, and have been there before and are there now. I hope I can one day do for others, what you and many more have done for me. Thanks. :)

Rebecca said...

Thank you for joining our journey as well! You are so blessed to have your little Emmie! And I completely know what you mean about a door being opened up to faces & families that need prayer because of "sickness". It's a world I never imagined I'd find myself in.

Blessings!

Mommy to those Special Ks said...

Hi there! I am new to your blog and your sweetie is adorable! My daughter Kennedy has Ds, she is almost 5. She battled Leukemia in 2007. She also had AAI (Atlanto axial instability) and had spine fusion surgery last year. She's doing great now and getting ready for Kindergarten! I look forward to getting to know your family! :)